A basic technology-aided programme for leisure and communication of persons with advanced amyotrophic lateral sclerosis: performance and social rating

Giulio E. Lancioni, Nirbhay N. Singh, Mark F. O’Reilly, Jeff Sigafoos, Fiora D’Amico, Gabriele Ferlisi, Valeria Zullo, Floriana Denitto, Enrico Lauta, Crescenza Abbinante, Caterina V. Pesce

    Research output: Research - peer-reviewArticle

    Abstract

    Purpose: This study assessed (a) the impact of a technology-aided programme on the leisure and communication engagement of persons with advanced amyotrophic lateral sclerosis (ALS) and (b) the opinion of rehabilitation and care personnel regarding the programme. Method: The programme’s impact was assessed with four participants who were allowed to activate leisure and communication options through basic responses (e.g. knee, finger or lip movements) and microswitches. Forty-two care and health professionals rated the programme after watching video clips of persons with ALS (three of the four involved in this study and three involved in previous studies) during and outside of the programme. Results: The programme was effective with all participants. Their mean percentages of session time with independently initiated leisure and communication engagements were zero during baseline and increased to between nearly 70 and 80 during the intervention. The care and health professionals rated the technology-aided programme as beneficial for the participants’ positive engagement and social image, fairly practical for daily contexts and interesting from a personal standpoint. Conclusions: The programme might be viewed as a viable resource for persons with advanced ALS.Implications for Rehabilitation A programme characterised by versatility, simplicity and relatively low cost could be considered practically relevant for persons with ALS and their contexts. A programme that is effective in fostering participants’ independent leisure and communication engagement and is positively rated by care and rehabilitation personnel is more likely to be accepted and used with consistency. Any programme directed at persons affected by ALS needs to be adapted to the persons’ progressive deterioration, starting from the response and microswitch used for accessing the programme’s options.

    LanguageEnglish (US)
    Pages145-152
    Number of pages8
    JournalDisability and Rehabilitation: Assistive Technology
    Volume12
    Issue number2
    DOIs
    StatePublished - Feb 17 2017

    Fingerprint

    Leisure Activities
    Amyotrophic Lateral Sclerosis
    Communication
    Technology
    Patient rehabilitation
    Rehabilitation
    Health
    Personnel
    Delivery of Health Care
    Deterioration
    Costs
    Foster Home Care
    Lip
    Surgical Instruments
    Fingers
    Knee
    Costs and Cost Analysis

    Keywords

    • Amyotrophic lateral sclerosis
    • communication
    • leisure
    • microswitches
    • technology-aided programme

    ASJC Scopus subject areas

    • Orthopedics and Sports Medicine
    • Biomedical Engineering
    • Physical Therapy, Sports Therapy and Rehabilitation
    • Rehabilitation
    • Speech and Hearing

    Cite this

    A basic technology-aided programme for leisure and communication of persons with advanced amyotrophic lateral sclerosis : performance and social rating. / Lancioni, Giulio E.; Singh, Nirbhay N.; O’Reilly, Mark F.; Sigafoos, Jeff; D’Amico, Fiora; Ferlisi, Gabriele; Zullo, Valeria; Denitto, Floriana; Lauta, Enrico; Abbinante, Crescenza; Pesce, Caterina V.

    In: Disability and Rehabilitation: Assistive Technology, Vol. 12, No. 2, 17.02.2017, p. 145-152.

    Research output: Research - peer-reviewArticle

    Lancioni, GE, Singh, NN, O’Reilly, MF, Sigafoos, J, D’Amico, F, Ferlisi, G, Zullo, V, Denitto, F, Lauta, E, Abbinante, C & Pesce, CV 2017, 'A basic technology-aided programme for leisure and communication of persons with advanced amyotrophic lateral sclerosis: performance and social rating' Disability and Rehabilitation: Assistive Technology, vol 12, no. 2, pp. 145-152. DOI: 10.3109/17483107.2015.1104561
    Lancioni, Giulio E. ; Singh, Nirbhay N. ; O’Reilly, Mark F. ; Sigafoos, Jeff ; D’Amico, Fiora ; Ferlisi, Gabriele ; Zullo, Valeria ; Denitto, Floriana ; Lauta, Enrico ; Abbinante, Crescenza ; Pesce, Caterina V./ A basic technology-aided programme for leisure and communication of persons with advanced amyotrophic lateral sclerosis : performance and social rating. In: Disability and Rehabilitation: Assistive Technology. 2017 ; Vol. 12, No. 2. pp. 145-152
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